Terms and Conditions
Welcome to the Live Well with Parkinson’s website. All information and content on this website is for education and information purposes only. It is not a substitute for a health care professional’s opinion.
This website is owned and operated by Live Well with Parkinson’s Disease Inc. (“LWWP”). Use of this website and all content and information on the website are subject to your agreement with all of these Terms and Conditions. LWWP may modify these Terms and Conditions at any time, and such modifications will be immediately effective upon posting the modified Terms and Conditions on the website. You agree to review the Terms and Conditions periodically to be aware of such modifications, and your accessing or using the website constitutes your acceptance of the Terms and Conditions as they appear at the time of your access or use.
Medical Information
LWWP makes every effort to ensure that the information on this website is accurate, however, LWWP makes no guarantee as to, and assumes no responsibility for, the currency, correctness, sufficiency, or completeness of such information or recommendation. You are advised to consult a qualified health care professional regarding all aspects of individual health care.
Medical Emergencies
If you are experiencing a medical emergency, you should not rely on this website for assistance, but should instead seek appropriate emergency medical assistance.
Privacy
We understand that you may be concerned about the privacy of your personal information collected in the course of your use of this website. We have prepared a Privacy Notice to briefly explain our information handling practices. Your use of this website is subject to the Privacy Statement and Privacy Policy contained in the Privacy Notice page and by using this website you agree with the terms and conditions therein.
Security
This security of any data you submit through this website is very important to LWWP. We review our security practices to help ensure that your data is maintained securely. However, no system can perfectly guard against risks of intrusion or inadvertent disclosure of information sent to us. When you transmit information through the internet, your information is transmitted over a medium that is beyond our control, and therefore the security of the transmission may be compromised before it reaches us. LWWP cannot and does not guarantee or warrant the confidentiality or security of the information you provide through this website. YOU HEREBY EXPRESSLY AND SOLELY ASSUME THE RISK OF ANY UNAUTHORIZED DISCLOSURE OR INTENTIONAL INTRUSION, OR OF ANY DELAY, FAILURE, INTERRUPTION, OR CORRUPTION OF DATA OR OTHER INFORMATION TRANSMITTED IN CONNECTION WITH YOUR USE OF THIS WEBSITE. Your user name and password should be kept confidential. Failure to do so may also compromise the confidentiality of your information.
No Warranties
YOU UNDERSTAND AND AGREE THAT LWWP AND ANY SERVICES, CONTENT, OR INFORMATION CONTAINED ON OR PROVIDED BY LWWP IS PROVIDED ON AN “AS IS” BASIS. LWWP DOES NOT MAKE ANY EXPRESS OR IMPLIED WARRANTIES, REPRESENTATIONS, OR ENDORSEMENTS WHATSOEVER (INCLUDING, WITHOUT LIMITATION, WARRANTIES OF TITLE OR NONINFRINGEMENT, OR THE IMPLIED WARRANTIES OF MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE) WITH REGARD TO THE SERVICE OR ANY MERCHANDISE, INFORMATION, OR SERVICE PROVIDED THROUGH THIS WEBSITE. LWWP DOES NOT GUARANTEE THAT USE OF THIS WEBSITE WILL BE FREE FROM TECHNOLOGICAL DIFFICULTIES INCLUDING, BUT NOT LIMITED TO, UNAVAILABILITY OF INFORMATION, DOWNTIME, SERVICE DISRUPTIONS, VIRUSES, OR WORMS AND YOU UNDERSTAND THAT YOU ARE RESPONSIBLE FOR IMPLEMENTING SUFFICIENT PROCEDURES AND CHECKPOINTS TO SATISFY YOUR PARTICULAR REQUIREMENTS FOR ACCURACY OF DATA INPUT AND OUTPUT.
Use of Brands and Linking to Other Websites
LWWP does not endorse or make any representation, express or implied, of any of the brands of products or services on this website. Any use of specific products or services are provided as examples only.
Links to websites not under the control of the LWWP, including those to our social media accounts, are provided solely for your convenience. LWWP is not responsible for the accuracy, currency, or reliability of the content of such websites. LWWP does not offer any guarantee in that regard and is not responsible for the information found through these links, nor does it endorse or make any representation, express or implied, regarding the linked websites and their content.
Copyright and Trademark Information
There are marks and logos on this website which contain trademarks and/or service marks belonging to companies other than LWWP. Unless stated otherwise, all material contained on the website is covered by a disclaimer and protected by copyright laws. The content and design of these marks, logos, trademarks, or service marks may be protected by Canadian, U.S., and international copyright laws. You may not copy, reproduce, republish, upload, post, display, transmit, or frame any of these materials without prior written consent from the copyright owners, except that you may view, download, display and print a single copy of these materials on a single computer for personal, non-commercial use only, so long as: (1) you do not alter or modify the materials in any way; (2) you include all applicable notices and disclaimers (including copyright notices); and (3) you do not use the materials in a way that suggests an association with LWWP and/or any other companies to whom the marks, logos, trademarks, or service marks belong. You understand and agree that title to these materials will not pass to you or any other user.
Limitation of Liability
You agree that you will hold harmless LWWP and its officers, directors, agents, employees, and volunteers from any and all claims related to your access or use of, or your inability to access or use, this website, or the information, services, or products contained in this website or other website to which it is linked.
THE USE OF THIS WEBSITE IS ENTIRELY AT YOUR OWN RISK, AND IN NO EVENT WILL LWWP BE LIABLE FOR ANY DIRECT, INDIRECT, INCIDENTAL, CONSEQUENTIAL, SPECIAL, EXEMPLARY, AGGRAVATED, PUNITIVE, OR ANY OTHER MONETARY OR OTHER DAMAGES, FEES, FINES, PENALTIES, OR LIABILITIES ARISING OUT OF OR RELATING IN ANY WAY TO THIS WEBSITE, OR SITES ACCESSED THROUGH THIS WEBSITE, AND/OR CONTENT OR INFORMATION PROVIDED HEREIN. YOUR SOLE AND EXCLUSIVE REMEDY FOR DISSATISFACTION WITH THE SERVICE IS TO STOP USING THE SERVICE.
SOME JURISDICTIONS DO NOT ALLOW THE EXCLUSION OR LIMITATION OF INCIDENTAL OR CONSEQUENTIAL DAMAGES, SO THE ABOVE LIMITATION OR EXCLUSION MAY NOT APPLY TO YOU. IN NO EVENT WILL LWWP’S TOTAL LIABILITY FOR ALL DAMAGES, LOSSES, OR CAUSES OF ACTION EXCEED ONE HUNDRED CANADIAN DOLLARS ($100.00).
Dispute Resolution
You agree that any dispute or claim (including personal injury claims) related to your use of the website is subject to the exclusive jurisdiction of Province of Ontario, Canada, and will be adjudicated pursuant to the laws of the Province of Ontario and the federal laws of Canada applicable therein. This agreement also applies to anyone claiming on your behalf. You expressly agree that any claims, lawsuits, actions, complaints, disputes, controversies, or other matters in any way related to LWPP or arising out of use of this website will be settled solely and exclusively through binding arbitration pursuant to the National Arbitration Rules of the ADR Institute of Canada, Inc. The arbitration will take place in Toronto, Ontario, Canada. You expressly agree that any such arbitrator has personal jurisdiction over you and you waive all defences of lack of personal jurisdiction and forum non conveniens. By agreeing to arbitration, you expressly waive any right to a trial by jury, and you expressly waive any right to initiate or become a member of a class proceeding against LWWP. You agree to abide by all decisions and awards rendered in such arbitration proceedings, and that such decisions and awards rendered by the arbitrator will be final and conclusive. You agree that the arbitrator will not have the right to award punitive damages or speculative damages. The arbitrator will be required to follow the laws of the Province of Ontario and the federal laws of Canada applicable therein.
Severability
If any of these Terms and Conditions is deemed to be invalid, void, or for any reason unenforceable, that specific term or condition is deemed severable and all other terms and conditions will nevertheless remain in full force and effect. Each term and condition will be valid and enforceable to the fullest extent permitted by law and any invalid, illegal, or unenforceable term or condition will be deemed replaced by a term or condition that is valid and enforceable and that comes closest to expressing the intent of the invalid, illegal, or unenforceable term or condition,
Privacy Notice
We, at Live Well with Parkinson’s Disease Inc. (“LWWP”), understand that you may be concerned about the privacy of your personal information collected in the course of your use of this website. We have prepared the Privacy Statement and Privacy Policy to briefly explain our information handling practices and to advise you about the ways in which we may collect, use, and disclose your personal information and how we safeguard such information. It also describes your rights and certain obligations we have regarding the use and disclosure of your personal health information.
Privacy law is a rapidly evolving area, and our privacy policies are subject to review to maintain their currency and compliance with evolving law and policy in this area. We may modify our privacy policies at any time, and such modifications will be immediately effective upon posting the modified privacy policies on the website. You agree to review this Privacy Notice periodically to be aware of such modifications, and your accessing or using the website constitutes your acceptance of the Privacy Notice as it appears at the time of your access or use. For more detailed information about our practices, contact our Chief Privacy Officer, whose contact information is found below.
Privacy Statement
When you are asked for personal information, you are sharing that information with LWWP alone, unless stated otherwise. LWWP collects information about which pages on our website are accessed and when, information volunteered by you, such as survey information, email address, and your preferred means of communication. LWWP uses the information that you provide for such purposes as responding to your requests; providing you with programs, products, and services that you request; customizing the information on this website for you; improving our website; and communicating with you. LWWP will not disclose any of your personally identifiable information, unless LWWP has your permission. LWWP does not sell or rent your information to anyone.
By providing LWWP with your personal information or by using this website, you are consenting to the collection, use, and disclosure of your personal information in accordance with the terms of this Privacy Notice. In certain limited circumstances, we may rely on your implied consent. You may withdraw your consent, subject to contractual restrictions, by providing our Chief Privacy Officer with reasonable notice, in writing, at the address below. If you supply LWWP with information about a third party, you represent that you are lawfully authorized to consent to the collection, use, and disclosure of that third party information by LWWP. You agree to indemnify and hold LWWP harmless for any and all claims resulting from the collection, use, and disclosure of information about a third party that you provide to LWWP.
Any communication or material that you transmit to, or post on, any public area of the site including any data, questions, comments, suggestions or other information is, and will be treated as, non-confidential and may be used by LWWP on the website and in other publications.
The website may use cookies. Cookies are generally used to make it more convenient for users to access the website. You may choose that the website “remember” your password and make it easier and faster to log-in. These types of cookies need to be stored on your computer’s hard drive.
We occasionally provide optional surveys to visitors of the website. The information from these surveys is used in aggregated and de-identified form to help LWWP understand our visitors’ needs to help improve the website. We generally do not ask for information in surveys that would personally identify you, but if we do for the purposes of follow-up, you may decline to provide it. If survey respondents provide personal information (such as an email address) in a survey, it is shared only with those people who need to see it to respond to the question or request, or with third parties who perform data management services for the website. Those third parties have agreed to keep all data from surveys confidential.
Information communicated electronically may be incorporated and retained by LWWP, but LWWP cannot guarantee and does not warrant the safekeeping of information sent over the internet, due to the insecurities of electronic transmission that are beyond LWWP’s control.
Privacy Policy
This Privacy Policy is based on international standards for privacy protection developed by the Canadian Standards Association and adopted as the basis for the Canadian federal Personal Information Protection and Electronic Documents Act. Below are the ten principles as they may apply to LWWP:
1. Accountability: LWWP has designated a Privacy Officer as the contact person who is accountable for LWWP’s compliance with LWWP’s privacy policies.
2. Identifying purposes: LWWP will identify the purposes for which personal information is collected before or at or the time the information is collected.
3. Consent: Your knowledge and consent, or a person authorized to consent on your behalf, are required for the collection, use, or disclosure of personal health information, except where otherwise required by law.
4. Limiting collection: LWWP will limit the collection of personal information to that which is necessary for the authorized purposes identified. Information will be collected by fair and lawful means.
5. Limiting use, disclosure, and retention: Personal information will not be used or disclosed for purposes other than those for which it was collected. Personal information will be retained only as long as necessary for the fulfillment of those purposes.
6. Accuracy: Personal information will be as accurate, complete, and up-to-date as is necessary for the purposes for which it is to be used.
7. Safeguards: Personal information will be protected by security safeguards appropriate to the nature and format of the information being stored.
8. Openness: LWWP will make readily available the specific information about its policies and practices relating to the management of personal information.
9. Individual access: Upon your written request, LWWP inform you of the existence, use, and disclosure of your personal information and will give you access to that information. You will be able to challenge the accuracy and completeness of the information and may request to have it amended.
10. Providing recourse: You will be able to address a challenge or complaint concerning compliance with the above principles to the Privacy Officer or to the Province of Ontario’s Information Privacy Commissioner.
If you have any questions or complaints about our privacy practices, or wish to access, update, or correct your personal information that we have on file, you may contact LWWP as follows:
By e-mail at livewellwithparkinsons@gmail.com
By telephone at 416-784-3600
(8:30 a.m. to 4:30 p.m. Monday to Friday)
Or by mail at:
Galit Kleiner-Fisman MD, FRCPC
Chief Privacy Officer
Live Well with Parkinson’s Disease Inc.
Jeff and Diane Ross Movement Disorders Clinic
ATC Baycrest Hospital
3560 Bathurst Street
Toronto, Ontario
Canada
M6A 2E1
About Live Well With Parkinson's
Dr. Galit Kleiner-Fisman, creator of Live Well with Parkinson’s, is the Medical Director of the Jeff and Diane Ross Movement Disorders Clinic, and an Assistant Professor of Neurology at the University of Toronto, in Toronto, Ontario, Canada.
The Jeff and Diane Ross Movement Disorders Clinic is a collaborative venture between Baycrest Health Sciences and the Assistive Technology Clinic (ATC). ATC is a comprehensive Centre that provides medical, rehabilitative and technological services to people with neurological disorders, and is housed on two sites (Sunnybrook Health Sciences Centre and Baycrest).
The Jeff and Diane Ross Movement Disorders Clinic, based at the Baycrest ATC site, is staffed by an interdisciplinary allied health team including a physiotherapist, occupational therapist, speech-language pathologist, health psychologist, pharmacist, Parkinson’s specialist nurse and a team of administrators and research assistants. The mission of our program focuses on providing ongoing support and strategies to allow those we serve to continue “living well” throughout the Parkinson’s disease continuum.
In order to actualize our vision of providing reliable, simple, and comprehensive information to the Parkinson’s community, ATC, and The Jeff and Diane Ross Movement Disorders Clinic partnered with the George Brown College (GBC) Applied Research Program to develop a Live Well with Parkinson’s website. Several divisions, of GBC were involved in developing the website and its contents. Food Innovation & Research Studio (FIRSt) in the Centre for Hospitality and Culinary Arts created the recipes for the protein redistribution diet; business analysis students and faculty created the medication scheduling tool and “back end “of the website, and animation students and faculty created the video animations to demonstrate challenging concepts.
Content areas in the Live Well with Parkinson’s website were identified by our clients at the Jeff and Diane Ross Movement Disorders Clinic. The information provided in the website aims to impart knowledge regarding Parkinson’s disease to the general public and medical and allied health professionals.
“Live Well with Parkinson’s, Inc.” and George Brown College would like to thank the following people and organizations for their generous support without which the website would not have been possible.
Jeffery Ross and Diane Mavrinac- Ross
The Assistive Technology Clinic
Baycrest Health Sciences
Ontario Ministry of Health and Long Term Care Academic Health Sciences Centres Alternative Funding Plan ((MOHLTC AHSC AFP) Innovation Fund
Novartis Pharmaceuticals Canada, Inc,
Teva Canada Innovation
Natural Sciences and Engineering Research Council of Canada (NSERC)
Ontario Centres of Excellence (OCE)
MaRS Discovery District
Medical Pharmacies Group Limited
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Special Thanks To:Jeffery Ross and Diane Mavrinac-Ross
We also want to extend an acknowledgment to the patients at the Jeff and Diane Ross Movement Disorders Clinic that have provided us with invaluable feedback in the creation of this website |
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Parkinson’s disease is a complex medical condition that affects everyone differently. People with Parkinson’s often have different results with the same treatments. A good understanding of Parkinson’s symptoms and how medications and other treatments may help them is important to ensuring that people with Parkinson’s enjoy the best possible health, while minimizing their risk of side effects from medications.
www.livewellwithparkinsons.com is a website devoted to giving people with Parkinson’s practical strategies for living well. There is currently no cure for Parkinson’s disease, but there are many ways for people with Parkinson’s to improve their quality of life.
Knowledge and education are powerful tools for Parkinson’s patients and their loved ones. This website’s aim is to educate and empower people living with Parkinson’s to live their best life and to make informed decisions in their medical care.